Saturday, August 30, 2008
Day 55.... Sorry I have not written in a few days. Sometimese we all need to step back and evaluate and collect ourself. Well it was hard to try to take in the MRI report that did not necessarily give us good news. But as Ty would have it, he continues to denie medicine. This week in therapy he had some VERY good days. He was arching his back and moving his head and body some more. When the therapist bent his knees up he held them there for a while. The speech therapist set him up with a censor that allows him to communicate. I haven't been up to see how it works exactly so this may not be 100% accurate. But he activates a computer, they tried with his thumbs but his small motor dexterity is quite there yet so they set it up to be triggered by using his knees, and this is working so far. The computer quietly reads him 20 different responses and he choses the response that he wants and then the computer says it loud for the people to hear. He has been able to do this and is responding appropriately to the questions. The responses do need to be somewhat limited because he has to listen to the responses until he hears the one he wants. This is very exciting. As everyone heads out to the Fair, if you see Kara or Bob, or Tracy Keber and want to record a message for Ty on their recorder just let them know. Kara is going to take it to Ty and play it for him. Now we still don't know if and how well he can see but we do know he can hear and understands what is said to him. So Keep those AWESOME prayers and wonderful words of encouragement coming, it is so needed and APPRECIATED! THANK YOU!!! and God Bless everyone who is going through this with us, we couldn't make it without each and everyone of you!!!
Tuesday, August 26, 2008
Day 51.... Tyler had a rough evening last night both his mom and dad were in van wert. But grandpa bill was with him all day and I came up in the eve. He was grumpy but you know how kids are when they don't get their way. So we got him all decked out in his OSU hat coach Tressel signed, put on his shades and took him for a walk. He lightened up later in the eve. I reminded him that he was hurt and I know he might be scared; but that Jesus has been with him every step of the way and is still with him and that he will continue to heal him; and the rest of us are going to do everything we can to help him get better. He moved his lips and tried to talk. This calmed him some. Today he had a GREAT day in therapy. He arched his back and the therapist bent his knees up 90 degrees and he held them there for about 15 seconds. This is very good. He continues to work on his swallowing and appears that the left side of his mouth might be trying to move. He wants to come home and we want that too. But we also want him to improve enough so he can communicate some and interact when visitors come over. We also want him to be strong enough to conitnue aggressive therapy as an out patient. This will take a lot of energy on his part. We thank God everyday for the miracle that he has given us but I know this story and Miracle is far from complete!!!!!!!!!!!!!!!!
Sunday, August 24, 2008
Day 49..... Tyler's MRI results are back today. He still has a lot of areas where there is blood in his brain. The brainstem has 2 areas where it appears the tissue has been permanantly affected. Cranial nerve three and ten are definitely invlolved in these areas. Cranial nerve three is involved in the movement of his eyes. This is not involved in his ability to see, it conrols the ability to move his eyes up and down. Cranial nerve 10 has multiple areas that it controls such as his reaction with his heart rate and some of his digestive system. This though does seem to be working somewhat. Tyler is aware he just can not communicate with us. We are working on his finger movement, and some sort of voice so we can establish some sort of communicaion. The doctor is going to try to get another week so they can focus on just that. The doctor feels that cognitively (ability to think and process things) he is further along again it is the fact he can't let us know what he wants to say. We need to focus our prayers on the areas that continue to have blood that needs to be absorbed and that God allows some of his tissue to regenerate so the signals can again get thru and he can speak and eat, and walk, and see. This has been a hard weekend and all the prayers and support are so greatly appreciated. On a happy note he had visitors and he did try hard to respond to them!!!!!! Thanks for taking the time to come visit!!!!!!
Friday, August 22, 2008
Day 47.... Another day of therapy. As everyone heads to class this week, Tyler continues with his classes too. He has therapy pretty much through out the day. In the morning he is working on being upright and putting weight on his legs. The he works on sitting and holding his head up. He also is working on moving his hands and feet. Especially his thumbs because the goal is as he progresses to some day have him be able use and electric wheel chair until he hopefully some day gets strong enough to walk. But right now the main goal is moving his fingers and toes, arms and legs, and and getting all of his muscles stronger so he can support his head and sit up. He also has been working on his swallowing and making noises. He made some today, which was good. So he continues to be wiped out by the end of the day. He gets a good nap in and then is awake in the evening to watch tv, listen to music, or have someone read to him. He opens his eye quite a bit sometimes you have to remind him. He tends not to want to when he is getting tired with his therapy, it is good to know that he is still a hard working, moody teenager. He gets his MRI tomorrow or Sunday, so this is good. Then early next week again they reevaluate to see if he comes home for a while or if he stays. By the way Kara tried to turn the game on for him tonight thru her computer but could not log on to the web site, so he was bummed. So call or blog and let him know how it went.!!!!!
Tuesday, August 19, 2008
Day 44.... This morning Ty had his bronchoscopy and it went well. His vocal chords are working. SO HE GOT HIS TRACH OUT!!!! He did well all day and is back in his regular room back in peds. So now we can work on him talking. He still is having a little trouble swallowing but he is working at it. He is starting to move his fingers and toes again. He has lost a large amount of musce and is very weak so he has not been able to move his extremities as much as he was at first. But hopefully as we slowly progress that will improve. We will know more in the next couple of days if the insurance will approve more therapy days in the hospital or if he has to go home for awhile. Thanks for all of the wonderful comments on the blog. He will really enjoy being kept up on the school news and daily goings on. Daily prayers are the best medicine!!!!!
Monday, August 18, 2008
Day 43..... Tyler had a lot of visitors this weekend. Tomorrow they are going to look into his lungs. This is called a bronchoscopy. They want to check his vocal chords. If they look good they are going to take his trach out and he will then be in ICU for a couple of days. Just to monitor him. With the trach out then speech can work on him trying to speak and communicate. He opens his eye to yes and no questions and he answers appropriately. The MRI is still pending the Dr. wants to consult with a neuro specialist in reading cranial nerves before she actually orders it, so it might be awhile. He enjoys being read to and hearing what everyone writes on the blog. He was happy that Kyle is keeping his spot at the lunch table. So keep sending him messages and we will read them to him. He is not always awake but he is aware of what we are saying. He is a miracle and the prayers are working, keep up the faith and prayers. THANK YOU EVERYONE.
Saturday, August 16, 2008
Day 41.... Tyler has been busy this week. He has been using a special lift so that he stands and has weight on his legs. He has been opening his eye more when it is not so bright. His pupil is still dilated so the light probably really bothers him. So Kara is going to get a pair of sunglassess with sides so he can wear when he is awake and see if he keeps his eye open longer. He has been working hard with speech on his swallowing, and moving his tongue, and they capped his trach to see if he would try to talk or make some sound. He continues to take trips in his wheelchair. WE are still waiting on the MRI to see what is going on in that head of his for sure. Early next week we should know if the insurance is going to allow for more therapy days or if he will have to go home for a while til he wakes up some more. He is still doing well just not awake enough for the insurance to qualify him for more days. So time will tell. We will continue to pray and take it one day at a time, and continue to Thank God for each little step that he is able to make. We also thank everyone for the ongoing steady support, ,prayers, and benefits that you have done for Tyler, Bob, and Kara. THANK YOU!!!
Wednesday, August 13, 2008
Day 38.... After a day of rest, Ty was back at working hard today for his therapists. They are considering doing an MRI to actually get a look at the brain stem and brain in a little better detail, so we know a little better at what we are dealing with. We do not have a definite date or time, but they are planning on scheduling it. He continues to enjoy his walks outside. His sisters have decorated his room. He also has his sign from all his friends!!! His Dr's nephew plays for the Toronto Blue Jays and they were playing in Detroit this past weekend and he gave Ty a hat signed by a few of the players and one of there baseballs. The Toledo Mud Hens come to the Hospital to visit patients on a regular basis and they stopped in today, and dropped off some signed bats. It is overwhelming and so appreciated of the care and support of everyone. Thank you.
Tuesday, August 12, 2008
Day 37..... Tyler was pretty tired today he slept most of the day. His wheelchair is pretty awesome. We took him for a couple of laps around the floor tonight. He worked good with speech again today. We are still waiting for the results of the tests on the nerves on his eyes and hearing. Thank you for all the support and comments on this blog. They are very uplifting and encouraging to us.
Monday, August 11, 2008
Day 36.... Tyler had a good weekend. He has his customized wheelchair and is able to go on walks each day. He continues to work hard with therapy. His sister read him a book this weekend and he kept his eye open while she was reading. He is going to get the nerves tested for his vision and his hearing. This will tell us if the nerves are working, not necessarily how well he can see or hear. He continues to make small strides each day. Prayer is powerful and working. THANK YOU so VERY MUCH.
Friday, August 8, 2008
Day 33.... What a beautiful day today. So nice in fact Tyler took a trip outside. He was off his oxygen while outside and kept his oxygen levels in his body up in normal ranges ( this is his O2 sats). Nothing like some fresh air and warm sun to energize the body. He also did very well with the speech therapy, with working on his swallowing. He is still occasionally opening his eye. Last night for TV selections he raised his eyebrow for CSI but when we found the Reds on he opened his eye. So we watched the Reds. After all his fresh air and hard work he will sleep sound tonight. As far as directions To Children's Hospital. Take 75 N into Toledo. You will go through Perrysburg, over the river, go past the 25 exit. You will see a sign for 475W- 75N split. 75N will vear to the right, 475W will vear to the left. You will want to stay in the middle lanes. You will take 475W if you stay in the middle lane as you split onto 475 you will be in the outer rt lane. Stay in the rt lane the very next exit as you split is exit 19. Take exit 19. When you come down the exit turn rt. Stay in the rt lane and turn rt at the light. You will want to get in the lt lane. You will see signs for the hospital. Go to the 2nd light and turn left. You will see the hospital. Go straight past the ER sign, and past the parking garage. As you go past the front of the hospital you will see a sign for valet parking. Turn rt into this drive it will take you to an open parking lot. You can park in this lot. Go into the hospital through the door that the Valet people are at. Go straight down the hall, as you come to the main entrance there will be a cafe on the rt and the main doors will be to your right. There will be a large desk. To the left you will see elevators. DO NOT USE THESE. There is a short hallway to the left of the elevators. Go down the hall, you will come to a 2nd set of evelvators, there will be only 2. Take these elevators to the 5th floor. Once on the 5th floor go to the rt. Go straight past the small empty desk. Just before you get to the closed doors is a hall turn left. His room is on the rt it is room 1508. The door may be shut, but Kara or Bob or a family member should be in there. Thank you for all the continued support and prayers!!!!!
Thursday, August 7, 2008
Day 32..... Sorry for the lag in the updates. Fatigue and computer issue caught up!!! Tyler first few days at Toledo went very well. He settled right in. His heart rate and respiratory rate improved greatly. The Rehab Physician spent 2 hours with Kara and Bob going over her plan and expectations. Tyler has one week to show improvements, then they will decide if he is truly ready for the aggressive rehab or if he needs to go home and try to wake up some more. BUT he as been doing well. They are doing Physical, Speech, and Occupational therapy sometime each twice a day. He was up on a Tilt table, this is a table that they strap in him and stand him up so he can have weight on his feet, hunting boots and all. He tolerated this well. Speech therapy has got him to swallow a few times, this is new and encouraging. He sleeps all evening, which is good for his healing. Thank you for all the support. Will try to give directions to the hospital and his room this eve.
Monday, August 4, 2008
Sunday, August 3, 2008
Day 28..... It is amazing how fast and how very slow a month can go. Tyler continues to work hard. He opened his eye for a special item and people over the weekend. A special friend of the family , Lyndsey Ruffer has had the opportunity to work with the OSU Football staff while attending college. She was speaking with the Head Coach about Tyler and Coach Tressel sent Ty an OSU hat that he autographed. This definitely was exciting for Ty he opended his eye for that one for sure!! That was so thoughtful of coach Tressel, please let him know the family greatly appreciates this and his gesture definitely brought joy to Ty and he had a wonderful reaction to it!!!!!! He also opened his eye when his Papa Priest asked him if he should buy a couple of horses... now this made his Papa very excited. He had some nice visits with his friends again this weekend. He does seem to enjoy those visits, especially after working so hard with the therapy girls all week. He has been opening his eye more when people are talking to him, but he is still in the coma for the most part. His lungs are doing well. Tomorrow is the big day. He will be transferred to Toledo Childrens Hospital. The next two days will be very hectic for him, the trip up there and then getting to know all the new doctors and nurses, and therapists. We will definitely try to let everyone know tomorrow eve, more details about where he is and the plans for him from here. Overall this weekend was good and the family is all geared up for the big move. We continue to pray for the ongoing healing and recovery for our precious Ty. Thanks to everyone for your ongoing understanding, support and PRAYERS!
Saturday, August 2, 2008
Day. 27.... After many phonecalls, and a tour of St. Joe. Bob and Kara and the doctors decided it was time to transfer Ty to another facility. Tyler has recieved excellent care at Parkview. But he is now consider stable from a medical standpoint, meaning no life threatening issues going on right now. So now it is time to work on waking him up and getting him stronger. After many hours of investigation Kara and Bob chose Toledo Children's Hospital. For several reasons, it is a certified pediatric rehab center, with pediatric specialists. If he would for some reason have a medical problem, eg... his lung collapse or an infection... he would be able to stay right there and be treated right there by pediatric specialists. Where as the other facilities they looked at are good but are slightly geared more to adults, and if he would need medical care he would need to be transferred back to another hospital like Parkview. So for overall care Toledo Children's was their best choice. The plan is to transfer him up to Toledo on Monday. The first couple of days will be very busy with new Docs evaluating his information and him, and coming up with a game plan for his recovery. As far as Tyler right now. He is still at Parkview on the Pediatric Floor, room 315. His chest tube is out, he continues to breathe on his own. The pneumonia has resolved nicely. His neuro status remains at the same stage. We are praying that this move and the aggressive rehab program that they provide will help Tyler continue on his journey to recovery. Please continue to Pray that God guides and controls Tyler's recovery, by healing him and placing the right people in his life at the right time!!!!! We love and Thank everyone out there who have been praying and supporting not only Bob and Kara but the entire family.
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